PNH Patient Registry

The PNH Patient Registry is a prospective, long-term, multi-center, multi-national, observational research initiative, compiling data on the natural history and management of patients diagnosed with PHN.

Contact Candace LeBlanc 508-556-5431 or Marcy Kirkpatrick 508-556-5429 for more information.

For more information about this study:

https://clinicaltrials.gov/ct2/show/NCT01374360