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The All of Us research program, sponsored by the National Institutes of Health (NIH), is an ambitious, nationwide effort to find better...
PNH Patient Registry
The PNH Patient Registry is a prospective, long-term, multi-center, multi-national, observational research initiative, compiling data on the natural history and management of patients diagnosed with PHN.
Contact Candace LeBlanc 508-556-5431 or Marcy Kirkpatrick 508-556-5429 for more information.
For more information about this study:
