
Join the All of Us Research Program...
The All of Us research program, part of the Precision Medicine Initiative through the National Institutes of Health (NIH), is an...
PNH Patient Registry
The PNH Patient Registry is a prospective, long-term, multi-center, multi-national, observational research initiative, compiling data on the natural history and management of patients diagnosed with PHN.
Contact Candace LeBlanc 508-556-5431 or Marcy Kirkpatrick 508-556-5429 for more information.
For more information about this study: